EDS Daily: Monday May 22nd, 2017

ehlers-danlos-syndrome-daily-journal-meg-hill-photo

MORNING EVALUATION:

1. TODAY'S DATE: monday, may 22, 2017

2. CURRENT TIME: 12:56 pm

3. CURRENT LOCATION: savannah, ga

4. CURRENT TEMPERATURE: 90

5. BLOOD PRESSURE: 

6. TIME I WENT TO BED: 10pm

7. TIME I GOT OUT OF BED: woke up at 8:30, got out of bed at 10 am 

8. TOTAL HOURS SLEPT: 10.5

9. HOW DID I SLEEP?: great actually! I have been really sleeping well lately

10. WHAT MEDICATIONS & SUPPLEMENTS DID I TAKE THIS MORNING? Armour hyroid 60 mg tablet x2/day | duloxetine hcl 60mg | ratitidine tablets 150 mg x2/day |  ccyclobenzaprine 5mg x 3/day | cetirizine hydrochloride 90mg x2/day | cannibus as needed for pain | chromium soduim 5mg 6x/day | 

11. WHAT PART OF MY BODY HURTS THIS MORNING ? woke up with pretty sharp pain in my left hip and back. legs hurting, but am now wearing compression sleeves on lower legs. very sore today after shooting a wedding on Saturday. headache. 

12. ON A SCALE FROM 1-10 (ONE BEING THE BEST AND TEN BEING THE WORST) WHAT IS MY OVERALL PAIN LEVEL THIS MORNING? WHAT TYPE OF PAIN IS IT?  8, soreness 

13. USING THE SAME SCALE AS ABOVE, WHAT WOULD YOU RATE YOUR OVERALL ENERGY LEVEL TODAY? 6, not high, but not as low as it sometimes is after shooting a big event

DO ANY SPECIFIC PARTS OF MY BODY FEEL FATIGUED? yes  WHAT DOES THAT FEEL LIKE? legs, neck, jaw.. it seems as if it takes a long time for my brain to reach my muscles today. 

14. DO I HAVE A HEADACHE?  yes 

15. HOW IS MY THOUGHT PROCESSING THIS MORNING? actually kind of decent 

16. DO MY LEGS WORK TODAY? enough to walk around the house 

17. DO I NEED ASSISTANCE TO WALK THIS MORNING? not really, just stabalizing 

18. ANYTHING ELSE WORTH NOTING? .. 

Had a wedding on Saturday here in Savannah, and am really proud of how well my body held up. I used the segway to get me around long distances, and was able to stand while doing the actual "shooting". Working as a team with E-S is getting easier, which allow my body to not bear all of the weight of the photos and the stress of the wedding day. Yesterday I was good to keep up on my chromium dosages, I stayed in bed all day not putting forth much physical effort and got two solid nights of sleep while eating well at the wedding and at home since. 

hEDS Daily: Saturday May 13th, 2017

i guess the elephant in the room should be exosed: i'm totally not following the schedule like I would like to. I am not interested in making myself feel bad about not meeting my "daily morning and evening check-ins". I'd like to keep giving myself grace and allowing this "check in" to happen as it should. 

is once a day all i have in me? awesome. let's do a morning evaluation. what if i check in at night? lets just do an evening evaluation.. that's how i am going to structure it, for my sanity, from now on. 

I started this post on Wednesday, and am just now finishing it on Saturday. Looks like I need to prioritize my time better! 

MORNING EVALUATION:

1. TODAY'S DATE: Saturday May 13th

2. CURRENT TIME: 11:00 am

3. CURRENT LOCATION: Savannah

4. CURRENT TEMPERATURE: 70

5. BLOOD PRESSURE: 

6. TIME I WENT TO BED: 10 pm

7. TIME I GOT OUT OF BED: 9:30 am

8. TOTAL HOURS SLEPT: 11.5!

9. HOW DID I SLEEP? awesome

10. WHAT MEDICATIONS & SUPPLEMENTS DID I TAKE THIS MORNING? Armour hyroid 60 mg tablet x2/day | duloxetine hcl 60mg | ratitidine tablets 150 mg x2/day |  ccyclobenzaprine 5mg x 3/day | cetirizine hydrochloride 90mg x2/day | medicinal marajuana as needed for pain | chromiam sodium 5mg oral x as needed daily

11. WHAT PART OF MY BODY HURTS THIS MORNING ? left hip, feet, head and fingers

12. ON A SCALE FROM 1-10 (ONE BEING THE BEST AND TEN BEING THE WORST) WHAT IS MY OVERALL PAIN LEVEL THIS MORNING? WHAT TYPE OF PAIN IS IT?  6, soreness 

13. USING THE SAME SCALE AS ABOVE, WHAT WOULD YOU RATE YOUR OVERALL ENERGY LEVEL TODAY? not sure yet, but I have a wedding today so it better be good! 

DO ANY SPECIFIC PARTS OF MY BODY FEEL FATIGUED? WHAT DOES THAT FEEL LIKE? 

14. DO I HAVE A HEADACHE?  yes, it's raining outside 

15. HOW IS MY THOUGHT PROCESSING THIS MORNING?  slow, but that's pretty normal for morning time 

16. DO MY LEGS WORK TODAY? yes

17. DO I NEED ASSISTANCE TO WALK THIS MORNING? no 

18. ANYTHING ELSE WORTH NOTING? I feel off the segway pretty hard on Thursday. I think the pain and soreness from that fall (on concrete) is starting to settle in. I'm interested to see how my body handles it.