EDS Daily : April 25, 2017

In an attempt to better understand my body, I'm making the decision (and upon recommendation from my physician, Dr. Francomono) to do a quick journal daily of symptoms, changes, diet, etc. to try to understand the pattern of how my body is working and responding to things. 

I've been wrestling with the form of media that I use for this daily practice, enjoying the feeling of pen to paper the best. I also have the knowledge of my past journaling experience, and know I won't stick to topic during those journaling sessions and will instead trail off on other ambient thoughts and ideas. Without considering my personal preferences, here are the forms of recording keeping I have been thinking of using for this project

• a small writing journal
• recording myself talking everyday
• audio
• video
• journal on my computer
• blogging daily on high five home space 

After thinking through all the pros and cons of each modality, I decided I'd start it here. I'm pretending I have someone reading this so there's accountability, right? I am more apt to do something if I know someone will be counting on me. 

Here are the guidelines I've outlined for myself:

• journal AM and PM (when I'd normally be checking business e mail) 
• design questionnaire for myself and answer said questions daily.
• share once a week with a cumulative post on this space, hoping that maybe my personal research/journey might be able to help cumulative research for Ehlers-Danlos Syndrome. Not only that, but most importantly help YOU who may be reading these things. 

So, here we go! Tomorrow I'll start. Tonight I'll formulate my questions in reply to a lot that I learned this past week during my appointment at The Harvey Institute of Human Genetics.