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EDS Daily: Monday May 1st

MORNING EVALUATION: wednesday april 26th, 2017

  1. TODAY'S DATE: May 1, 2017

  2. CURRENT TIME: 2:44  

  3. CURRENT LOCATION: carrboro, north carolina 

  4. CURRENT TEMPERATURE: 80

  5. BLOOD PRESSURE: ( I have really got to remember to do this every morning.. it's to monitor and assess POTS ) 

  6. TIME I WENT TO BED: 1 am

  7. TIME I GOT OUT OF BED: 10:45 AM

  8. TOTAL HOURS SLEPT: 9.45 hours

  9. HOW DID I SLEEP? I actually slept really well.. I had a hard time falling asleep because my mind was racing, but once I fell asleep I stayed asleep and only got up once to use the bathroom! 

  10. WHAT MEDICATIONS & SUPPLEMENTS DID I TAKE THIS MORNING? armour 60mg | cymbalta (generic) 60mg | gabapentin (generic) 5mg | 

  11. WHAT PART OF MY BODY HURTS THIS MORNING ? lower back especially left side , my legs have ant/numbing pain from knee to bottom of foot. I am overall very sore today (ribs, neck, back, shoulders, jaw, knees) but I do not have the acute pain that I thought I would after yesterday's segway rides! 

  12. ON A SCALE FROM 1-10 (ONE BEING THE BEST AND TEN BEING THE WORST) WHAT IS MY OVERALL PAIN LEVEL THIS MORNING? WHAT TYPE OF PAIN IS IT? 4.5.. as mentioned above, mainly sore muscles and joints. car crash type pain. 

  13. USING THE SAME SCALE AS ABOVE, WHAT WOULD YOU RATE YOUR OVERALL ENERGY LEVEL TODAY? DO ANY SPECIFIC PARTS OF MY BODY FEEL FATIGUED? WHAT DOES THAT FEEL LIKE? my brain is actually really sharp and ready to work! I have lots to do today. 

  14. DO I HAVE A HEADACHE?  yes, but it is not a migraine.. maybe because of the april showers that have been blowing through in north carolina

  15. HOW IS MY THOUGHT PROCESSING THIS MORNING? pretty fast! right after i woke up, I took my medicines, listened to some music, and then took waverly then dakota both on walks/runs on my segway lasting for about 1 hour total!

  16. DO MY LEGS WORK TODAY? YES!!!

  17. DO I NEED ASSISTANCE TO WALK THIS MORNING? this morning, no :) 

ANYTHING ELSE WORTH NOTING? I realize I didn't check in for the past few days, as I was separating myself from media for 24-ish hours. Those hours were spent meditating and clearing space to be able to better feel and understand my pain and my body in relation to that pain. Several insights were found, and I would like to document them below so that I can refer back to this post later:

  • through reflex testing and needle testing, it was determined (by myself) that my legs from hip to knee are mainly numb. Sharp pain sensations are very delayed and are "muted" in how loud they feel. This also happened with slapping sensation, bumping sensation (one that would cause a bruise), water as well as air. However, from the knee to foot is an entirely different story. The pain sensation was heightened more-so than anywhere else on my body. I am curious why this is the case?
  • Pooling of blood happens in knees to feet after standing and walking for more than 30 minutes at a time
  • left side of body has less muscle mass around joints than right side of body. 
  • left side of body is more hypermobile than right
  • more pain in left side of body
  • back (possible tethered chord syndrome?) feels better when posture is made different than what is "natural".. tucking tail and allowing knees to be "knock kneed" puts pressure off back pain. The pelvis ends up being tilted forward and tail is tucked. It eliminates all curvature of lower spine.
  1. Is this ok?
  2. Should I start taping this to allow re-training of posture?